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Disability and Cancer Care

Treatment and Care Policy


Executive summary

All Australians affected by cancer should be supported to access and receive optimal cancer care. Around 4.4 million people (18%) in Australia live with disability.1 Many people living with disability will be affected by cancer in their lifetime, but will often experience delays or inequities in cancer screening, diagnostic tests, treatment, and survivorship care, resulting in poor health outcomes.2, 3

This policy focuses on the experiences of people with disability and the issues that remain unaddressed by the Australian healthcare and social support systems to enable their equitable access to optimal cancer care.

The policy priorities identified here aim to improve understanding of the experiences of people with disability undergoing cancer care:

VisionPriority Areas
Quality data drives improved care for people with disability and cancer

Standardise the collection and reporting of data on disability and cancer

Investigate and report on the existing experiences of people with disability and cancer in Australia

Cancer care services are accessible and inclusive to all peopleDevelop an Optimal Care Pathway for People with Disability to support health service accessibility and to guide adjustments required for optimal cancer care
All people affected by cancer are supported to optimise their wellbeing and quality of lifeUnderstand the support needs of people with disability to enable participation in cancer screening and ensure continuity of cancer care, while maintaining independence and wellbeing

Acknowledgements

Cancer Council would like to acknowledge the following people for their contribution to this policy on disability and cancer care.


NameOrganisation
Dr. Jennifer BaldockCancer Council South Australia
Shona EdwardsCommunity Representative nominated by Clinical Oncology Society of Australia
Angelique GellertCancer Council New South Wales
Olivia HartCancer Council Australia
Dr. Clare LynexCancer Council Australia
Amanda McAtamneyCancer Council Australia
Sarah McHutchisonMcCabe Centre for Law and Cancer
Heather McMinnNational Disability Services
Drew MeehanCancer Council Australia
Chelsea RivierePublic Health Association of Australia
Annabel SextonCancer Council Australia
Megan VarlowCancer Council Australia
Kate WhittakerCancer Council Australia
Clare WoodsCentral and Eastern Sydney Primary Health Network

Cancer Council extends its appreciation to those people and organisations that contributed to developing this policy chapter but have asked not to be identified for privacy and other reasons.

Cancer Council acknowledges the importance of co-design in developing policy priorities and that more work needs to be done to understand the needs of disability-representative organisations and people with lived experience of disability. Cancer Council remains committed to supporting the implementation of these policy priorities and ensuring they continually reflect and achieve the community's needs. During the development of this policy, the Royal Commission into Violence, Abuse, Neglect and Exploitation of People with Disability report was ongoing, which presented a challenge to engage with the community. However, we have tried to reflect on the issues and findings of the commission in this policy.

External reviewers:

Associate Professor Shane Clifton - Sydney School of Health Sciences, Faculty of Medicine and Health

This policy has been approved by the CEO of Cancer Council Australia.



Policy review period

This policy was published on 31 March 2025.

This policy will be updated as required as new information and evidence is available. A full review will be considered every 3 years, with this next review due to commence in 2028.

If you have any questions about this policy, email: cancercontrolpolicy@cancer.org.au.


References

  1. Australian Institute of Health & Welfare. People with disability in Australia. Canberra: AIHW; 2024.
  2. Iezzoni LI. Cancer detection, diagnosis, and treatment for adults with disabilities. The Lancet Oncology. 2022;23(4):e164-e73.
  3. Reeves C, Collingridge D. Improving cancer care for people with disabilities. Lancet Oncology. 2022;23(4):446-7.